MYELIN SYMPOSIUM 2026

8 May 2026 | Leipzig

Programme

Certification: 10 CME points

 

X-linked Adrenoleukodystrophy: Past Achievements and Future Partnerships

Friday, 08.05.26

 

Schedule

08:00–08:30 Arrival and registration

08:30–08:40 Welcome and Introduction

​ Joseph Claßen, Leipzig 

Session 1: Histopathologic Features and Biological Foundations

Chairs:

​Ruth Stassart, Leipzig & Florian Eichler, Boston

08:40–09:00 Myelin and Oligodendrocyte Research in Leipzig: Past and Future

​Ruth Stassart, Leipzig

09:00–09:20 X-ALD Histopathology in the Context of White Matter Disorders

​Christine Stadelmann, Göttingen

09:20–09:40 Organelle Pathology in X-ALD

​Aurora Pujol, Barcelona

09:40–10:00 Biomarkers for Diagnosis and Monitoring of Disease Progression

​Isabelle Weinhofer, Vienna & Johannes Berger, Vienna

10:05–10:15 Discussion

10:15–11:00 Coffee break

 

Session 2: Clinical Monitoring – Towards International Collaboration

Chairs:

​Ludger Schöls, Tübingen & Ettore Salsano, Milano

11:00–11:15 European Collaborative Networks in Rare Diseases

​Ludger Schöls, Tübingen

11:15–11:25 Federated Registries and International Databases for adult CALD

​Julia Lier, Leipzig & Eda Kabak, Amsterdam

11:25–11:50 Clinical Monitoring of Disease Progression in Adrenomyeloneuropathy

​Marc Engelen, Amsterdam

11:50–12:00 Neuropsychological Assessment in Adult Leukodystrophy Patients

​Lisa Schäfer, Leipzig

12:00–12:10 Natural History of Cerebral Lesions in Adult X-ALD

​Markus Ponleitner, Vienna

12:10–12:30 Discussion

12:30–13:30 Lunch break

 

Session 3: X-ALD Therapy

Chairs:

​Ali Fatemi, Baltimore & Johannes Berger, Vienna

13:30–13:50 Emerging and Future Therapeutic Strategies in Leukodystrophies

​Ali Fatemi, Baltimore

13:50–14:10 Lerigltazone - A New Treatment Option in ALD?

​Fanny Mochel, Paris

14:10–14:30 HSCT and Gene Therapy in Childhood cALD

​Troy Lund, Minneapolis

14:30–14:50 Long-term Outcomes in Transplanted Childhood Cerebral ALD

​Jörn Kühl, Leipzig

14:50–15:05 Hematologic Standards in Adulthood Cerebral ALD Transplant

​Georg Franke, Leipzig

15:05–15:20 Cellular Perspective on Neurologic Outcomes

​Caroline Bergner, Leipzig

15:20–16:00 Targeting Cancer cells with Chimeric Antigen Receptors (CARs) – a “Blueprint” and potential new strategy in treating Leukodystrophies?

​Ulrike Köhl, Leipzig

16:00–16:10 Discussion

16:10–16:30 Coffee break

 

Session 4: A Century of X-ALD Research: From Discovery to Future Perspectives

Chairs:

​Ann Moser, Baltimore & Wolfgang Köhler, Leipzig

16:30–16:40 History of the Last 50 Years Progress in the Leukodystrophies

​Ann Moser, Baltimore

16:40–17:10 100 years X-linked Adrenoleukodystrophy

​Florian Eichler, Boston

17:10–17:30 Hope and Challenges - The Patient Perspective

​Martin Büchler, ELA Deutschland

17:30–18:00 Past and Future: The German X-ALD Story and Closing Remarks

​Wolfgang Köhler, Leipzig

Rahmenprogramm

18 Uhr Stadtführung

19 Uhr Konferenzdinner im Barthels Hof